Lizzy Sue is from Fulton. She is 13
Diagnosis: Cystic Fibrosis
Lizzy was diagnosed with Cystic Fibrosis when she was just 2 weeks old. It was without a doubt the most devastating day of mine or David’s life. We have big hopes and dreams for Lizzy that aren’t any different than those we have for our son, Wyatt. We want to watch her grow up and find happiness- in whatever way she chooses to define that happiness. We believe in miracles, and we can’t wait for the day we see our miracle, Lizzy, receive her miracle of a cure.
Currently, Lizzy is completing about 2 and a half hours of breathing treatments and therapies a day. She takes three different inhaled medications each day- healthy or not- and completes 30 minutes on her Vest that helps loosen the mucus twice a day, every day- four times when she is sick like this winter. She takes about 30 pills a day between her enzymes and vitamins. She takes daily Miramax to help with some bowel issues she has related to CF as well. Yet overall, she’s doing great and continues to amaze us every day. She powers through any obstacle thrown her way with a smile on her face. She knows what all of her medications are called, and can tell you all about her enzymes and vitamins. The hardest thing recently is that with her growing age, she is becoming more aware that she is a little different from other kids. She notices and asks why they do not have to wear a mask or the vest. She is also growing to understand trips to the hospital, saying she knows she needs to go to get better. All of Lizzy’s doctors and nurses continue to make it a positive and fun place for her, and she is building relationships with her favorite hospital staff. We stay hopeful and optimistic that a cure will be found.
Lizzy loves dancing, dancing, and more dancing. She loves to run around and play on the farm. She does great in school and thrives with tumbling and dance. She enjoys being with friends, shopping, playing with her brother, and going to Starbucks!
Her parents are David and Megan Metz