Bennett, aka “Super Bennett” is from Rolla. He is 5.
Diagnosis: T-cell acute lymphoblastic leukemia (T-ALL)
No parent is ever fully prepared to hear the words, “Your child has cancer.” For us, it was an overwhelming blend of emotions and a flood of information, forcing us to adjust our lives in ways we never imagined. The day we were admitted, we had gone to Columbia for a CT scan, which nearly didn’t happen because of scheduling conflicts and my son’s lack of cooperation. Thankfully, a child life specialist stepped in, and we were able to complete the scan successfully.
It was on that day that we were faced with the possibility: “Your son likely has cancer.” The conversation about the CT scan results with the radiologist, oncologist and infectious disease doctor was handled with immense kindness and concern. We had to be admitted that day, and we waited in the clinic for a room on the floor to become available. Dr. Severance, Bennett’s oncologist, visited us several times to check in on us, and at one point, when he asked if I needed anything and I mentioned coffee, he kindly brought me one from Lakota Coffee and even threw in some chocolate. Though he may not remember his small act of kindness, it meant the world to me on a day when everything seemed to be falling apart.
While I’m eager to share more about Bennett and his battle, I also want to highlight the exceptional care he’s received from all the medical teams involved. From the child life specialists to the clinic nurses and the oncologists. After Bennett’s official diagnosis, we did take him to a larger hospital to get a second opinion. We ultimately decided to stick with the medical team at Columbia because of the care and attention we had be given from day 1. We have never once felt like a number when we’ve been in clinic. Every interaction has been filled with empathy, dedication, and a personalized approach that has made us feel seen and supported. Our concerns and questions are always answered with patience and understanding. I fully believe their commitment goes beyond professional duty; it’s a heartfelt commitment to their patients’ and family’s well-being.
New Updates:
Bennett became disease-free following the initial phase of chemotherapy, an outcome that we’ve been told is uncommon. We continue with treatment, and after his most recent bone marrow biopsy, he remains disease-free. We recently transitioned into the maintenance phase of chemo, which means we’re starting to get back to what feels like a bit of normal life again.
Although Bennett’s journey is not over yet, we’re optimistic for the future and can’t wait to celebrate the day he gets to ring the bell. He enjoys playing with his older brother (Chadix), riding his scooter, swinging, outdoor play time, playing with his cars (Hot wheels are his fav), reading, and playdoh.
His parents are Fred and Tara Stone.